Past Chairpersons/Visionaries

Past Chairpersons,
Visionaries

Honorary Co-Chairman - Jone See's Story 2016

I was diagnosed with ALS in December of 2014. I am a retired registered nurse so when I gradually started experiencing foot drop in the spring of 2014 I knew something was wrong. Because the foot drop was gradual and I was in denial, I didn't consult with a neurologist until November of 2014. As soon as the neurologist saw the results of the EMG they made the diagnosis. I sought a second opinion with the University of Minnesota ALS clinic and it took three months of additional tests, observations and evaluations to confirm the diagnosis in March of 2015. I am still mobile but move slowly and I am becoming more unsteady. My voice is also affected as I have both upper and lower motor neuron ALS. I have been taking care of sick people since I was in high school while working in my hometown hospital and throughout my nursing career. I've always tried to be compassionate and a good example for my patients and others. With ALS I continue to strive to be a good example for my family and friends as I face the challenges of this disease.

I feel so blessed to have my loving husband of 45-years, five wonderful and supportive children, seven sweet and caring grandchildren, and many compassionate friends.

Like Steve Lufkin, last year's honorary co-chair said, we have to remain focused on the positive aspects of living every moment and every day.

Now, when we toast our glasses, we toast to the MOMENT. And I try to remember that with ALS, I will have time for a LONG AND MINDFUL GOODBYE!

ALS can be diagnosed at any age and, as of now, life expectancy is short. WE NEED TO FUND RESEARCH to FIND A CURE!

Jone See

Honorary Co-Chairman - Steve Lufkin's Story 2015

Steve was diagnosed with ALS (Amyotrophic Lateral Sclerosis), or Lou Gehrig disease, in the spring of 2014. The road to a diagnosis was long. In hindsight, the symptoms began in the spring of 2013, when he experienced cramps in his left leg while hiking on spring break. Months later, after several doctors, and many tests, MRI’s, appointments, and through the process of elimination, Steve was diagnosed with ALS.

Steve has much to be thankful for... It seems that he has a slower progressing form of ALS, and God-willing, he will beat the 3-5 year life expectancy for PALS. At this point, there is no cure and it is considered a terminal illness. Yet, like many with ALS, Steve has chosen to take on this fight with faith, courage, and a positive attitude! Thankfully, he does not have to fight this alone. He has his wife, Stacy, sons- Isaiah and Zachariah, his family, and many friends and former students to support him in this fight!

From the beginning, me and my family chose to approach this in a positive manner... believing in the best, praying for miracles and time together, but also being realistic and proactive in our approach to dealing with ALS and the changes it will bring to our lives. One of the first things we did was set some "rules" for our family and friends...

  1. Have Faith -- God IS good ... ALS is NOT part of HIS perfect plan.
  2. Focus on the positive
  3. Look for the Blessings in Life
  4. Remember that crying is good - and okay to do! (Even in front of Steve!)
  5. Hugs and High-Fives are important! (Steve wants and needs these even when he can't give them back!)
  6. Communicate your thoughts and feelings ... This is key!

We need to fund research to FIND A CURE so families can have their loved ones around for a long time! May God bless you as much as he has blessed us!

Steve Lufkin

Honorary Co-Chairman - Michael Brandt's Story 2013, 2014

Michael Brandt

Michael inspired a worldwide community to take action against ALS. Team Mustangs was formed shortly after Michael's diagnosis on April 1, 2011. This passionate group of riders of all ages, donors, volunteers and supporters surrounded Michael and his family with love and support. Michael's commitment to ALS research and his vision of a world free from ALS motivated his generous community to steer over $251,000 into ALS TDI's world-class research engine. Team Mustangs' involvement in ALS TDI's research and the ALS Bike Trek MN have contributed greatly in the success and growth of this annual event. Michael's battle with ALS ended on Friday, January 17, 2014, but Team Mustangs continues to fight in his memory. Please donate here to support Team Mustangs and learn more about Michael here.

Team Mustang

Honorary Co-Chairman - Michael Winston's Story 2012

When Minnesota resident Michael Winston was diagnosed with ALS at the young age of 24, friends and family were stunned that such a young person could be affected by such a tragic, terminal disease. While this dreadful disease typically affects people over the age of fifty, increasing numbers of young people are being diagnosed. From diagnosis to death, life expectancy is typically two to five years.

Michael Winston

Three to five thousand people are diagnosed with ALS annually. Patients diagnosed typically suffer gradual and devastating weakness and eventual total paralysis of the body, while the brain itself continues to function normally. Hopelessly trapped in a body that cannot function, victims lose the ability to move, hug, kiss, smile, eat, cough, talk and more.

Michael Winston

Michael Winston was diagnosed on October 1st, 2008. Surrounded by an incredible community filled with friends and family, Michael's battle with ALS ended on September 1, 2013. To learn more about Michael and his family, please view this powerful video that was showcased at the 4th Annual Winning for Winston event on October 18, 2012.

Michael Winston

Honorary Co-Chairman - Bob Stimson's Story 2010, 2011

Bob Stimson

Bob was one of TCBC's (Twin City Bike Club) founders and an avid cyclist. After a six year battle with ALS he died on January 12, 2011. One of Bob's important dreams was fulfilled May 2010 as he witnessed the First Annual ALS Bike Trek Minnesota take place. He was one of the visionaries behind the event and was instrumental in its success.

When I turned 61, I was feeling great and just hitting my stride. I had traveled and lived around the world, started several businesses, played music professionally and flew the Concorde twice! There were so many more things that I wanted to accomplish. However, my life as I knew it came to a halt when I was diagnosed in 2005 with ALS; my future was about to drastically change.

My love for bicycling started in the early '90s, when I joined TCBC. I am honored to have the support of my fellow members of TCBC, along with ALS TDI and MDA's Augie's Quest. I want to use my voice to bring awareness to this devastating disease by inviting you to join our fundraising ride in beautiful Big Marine Park Reserve in Washington County.

Bob Stimson, February 2010
Bob Stimson

Ride in memory of Bob and in support of all the other PALS (people with ALS) and their families and friends who are affected by this cruel disease where currently no treatment or cure exists.